Sometimes life gets in the way....

...of blogging! I've been so busy this past month. It's been crazy, but fun. Sometimes not fun. :-(Let's start from the beginning I suppose. I write as well as I remember.I was feeling very depressed so I requested to go back on Pristiq again. They started me off slow to try and avoid seratonin syndrome. I started at 25mg for a week and then bumped it up to the full 50mg for another week. About 3 days into the 50mg dosage I got seratonin syndrome. It was aweful. I was hot and dizzy and my heart was all thumpy. I went to the ER and they did an EKG, and made me sit for about 2 hours then told me not to take Savella and Pristiq together. Well, duh. So long story short I played phone tag with my doctors for a while and am now no longer taking the Savella. The best part is that I am not afraid to leave the house as much. I even got the mail on my own for the first time in months. The worst part is that I am having more pain.
About a week after I came off my Savella was my very first fashion show. Well, ok I've been in shows before, but as a model. This was my first show as a designer. We left Saint Cloud on Thursday and checked into a hotel since I had to be there at 12 on Friday. We thought the hotel would be a convenience, but in reality it just made things harder I think. I've been doing gluten free for my IBS, and the continental breakfast was anything but. Also, the hotel room was super small and the bed was hard. So I won't be staying there again. In all the show went great. I must have run up and down 2 flights of stairs at least 60 times that day. By the end of everything my legs were shaking from the pain. But the show was awesome.This is a photo of me and my models from the show.
In true Fibrolita fashion I managed to forget my clothes for the show at home. So I am wearing clothing from Scoundrelle's Keep. Photo by Photosynthetic. Check out the shop for my clothing at seraphimfeathers.etsy.com

The next day was the birthday party of my friend, and I drank too much and danced too much. Relaxing on the couch at the club, my back was hurting.
Relaxing on the couch at the club, my back was hurting.

Sharing Lambic with Jon. Turns out it's not gluten free.

A cosmopolitan. It was yummy.

So by Sunday I was in full on flare mode. But I wanted to visit the Mall of America before I had to go back to Saint Cloud. So I got pushed around the mall in a wheelchair for the day.

I am just now beginning to get over the flare, which is nice, but being laid up for a week was not.

Yesterday I went apple picking with my friends too! I will make a different post for that. :-)

Excuse my absence

Life has caught up with me again this week, so I am sorry I haven't been around. I have a few posts planned in my head and I will be typing them up ASAP.

I've changed the posting schedule for My Fibro Family posts to once a month, so you will be seeing the next one on Sept. 9th.

Everybody Etsy will remain weekly for now.

Fibroversery?

It's August now, and that marks one year since being diagnosed with Fibro. I don't remember the actual date though. So, it's time to talk about how things have changed for me, for better and for worse. I'll use (+) for good things and (-) for bad things.

(+) I am more educated on my illness.
(-) I've had to cut back hours on my part time job.
(+) I've started this blog.
(-) Got denied disability benefits
(+) I've met super amazing people who share this illness.
(-) I don't get out as much as I used to.
(+) I changed neuros to a better more understanding one.
(-) My fibrofog has gotten worse.
(+) I've learned to write things down.
(-) Lyrica didn't help and made me gain weight.
(+) I am off the Lyrica!
(-) My pain seems to be getting worse.
(+) I've found Savella, and I think it's helping.
(-) Had to come off my depression medication.
(+) I am learning to be more positive.
(-) I don't sew as much.

Fibro really has affected my lifestyle. As much as I feel like I am missing out on, I also feel blessed to have met the fibro people I have met. They've helped me learn how to cope, they've been there when I couldn't. We are all connected and I call them my fibro family. With out them, I wouldn't understand this disease the way I do now. I still have lots to learn, and lots of healing to accomplish, but I will get there.

This month I will be posting many links to articles, and blogs I have found helpful. It's a big month for me, even though my fibro symptoms started much earlier than one year ago, this was the month that gave what was plaguing me a name. It's not so mysterious now.

I also want to hear from you, my readers and fibro family. I want to share your stories with the world. If you wish to participate please email me at fibrolita@gmail.com for an interview!