Last week on Thursday I went to the RNA clinic in Edina, MN. The initial visit is 2 hours, and they go over your whole life with fibro. They listen to your symptoms and write them down and give you pointers on how you can make things better. I left the appointment with a folder full of articles on Fibro, sleep and diet. They informed me that I have hypermobility (pretty flexible) and that has been connected with fibro. They also did a more in depth tender point test than what my neuro did, which opened my eyes a little. I've had mysterious hip pain since about age 12-13 or so. No doctor could figure out why. I've done PT for it and no help has come. I just learned to live with it. When she did the tender point test, she touched the area on my hips that always hurts. It hurt terribly, but I was happy to finally have an answer to that hip pain.
In all I was very happy with the experience with the 2 ladies that run the clinic. They understand fibro in a way my neuro has never expressed. They know it's hard to get up and exercise. They understand the feeling of loosing my former life. I go back again to talk with them and learn more of my condition on Wednesday.
Before I wrap up this post, I wanted to point you in the direction of this post: A Spoon for a Friend. Not because the poster mentions me, but because it's an understanding blog from a non fibro sufferer. If more people could be as understanding as she is, our lives would be easier.
Looking for your own Fibro specialists? It's a short Google away, but I can take some of of the leg work out for you.
FM Aware's List of Doctors: http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
Just find your state and go from there.
Fibromyalgia and Fatigue Centers: http://www.fibroandfatigue.com/treatment-center-locations-and-contact-information.html